Month: September 2021

  • My story has value


    This quote from Hannah Gadsby’s Nanette has always resonated with me but now more than ever: my story has value. When I launched the NYG membership I once again had the privilege to learn and listen to people’s stories of disability and chronic illness. Although our stories are similar, each is a unique and incredibly personal depiction of adversity, triumph and loss.

    The complex diagnoses that accompany chronic illnesses and disabilities can often result in stories filled with the heart-breaking recounting of losing every part of yourself only to find something that much more beautiful beneath all those layers. For many, uncovering the vulnerable inner you and having the courage to finally step out into the light as your true self, accepting and acknowledging both your strengths and limits, is freeing.


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  • Finding quality of life in chronic illness


    Life with a chronic illness can sometimes feel like work/sleep/clean – repeat indefinitely.

    It’s sometimes as if all the fun is sucked out of life because of fatigue and limited energy, but what if I told you doing things just because they make you happy is allowed too? What if I told you, it’s not only possible, it can actually be beneficial to step away from the cleaning, let the house get a little messier and spend some time on yourself instead?


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  • What is radical acceptance?

    What is radical acceptance


    Radical acceptance sounds like the kind of new-age bull you might want to steer clear of, along with juice cleanses and ‘think yourself better’, but it’s not what you think.

    Before we talk about what radical acceptance really is, we need to highlight what it definitely isn’t!

    Radical acceptance is not approval of a situation. Just because you are accepting a situation for what it is, it does not mean that you think it’s good or right. It just means you are aware you can’t change it.

    Radical acceptance, at its core, is about recognising what we can and can’t control in our lives. There are some things, like whether or not you become sick, you don’t get a say in. It’s about finding a way to live with that situation as peacefully as possible.

    For many chronically ill people it can be hard, particularly when first diagnosed, to accept the challenges and limitations a chronic diagnosis can bring. Sometimes, it can feel that the negatives outweigh all the positives in our daily lives. Radical acceptance is one way to help balance the complexity of feelings chronic illnesses and disability can bring.


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