*Finally get diagnosis you’ve fought years for* My brain: are we sure that’s right? S oooo, it turns out being medically gaslit for years does have an impact. Who would have known? I found out that for years I have had an incorrect diagnosis and in fact I don’t have fibromyalgia but do have subclinical […]
How to do anything as a person with chronic fatigue L iving with chronic fatigue should be a sport it’s such a monumental challenge, except it can’t be a sport because every single competitor would be too tired to turn up for the qualifying rounds, never mind the main event.
Stop hiring one Paralympian and calling it a day on disability representation L ook, no shade to the Paralympians, you are all great. However, just like with non-disabled people not everyone who’s disabled is born to be an athlete and – frankly – it sucks this is often the only disability representation that we […]
What it means to have disabled pride A lot of people don’t get the importance of disabled pride. They often think we are glorifying something that shouldn’t talk about. Disability isn’t something to hide or feel embarrassed of and you aren’t alone.
How to Support a Loved One Through Diagnosis I f you’ve been sent this blog by a loved one, the chances are you don’t really understand the diagnosis process and they want to help explain the complexities around diagnosis a bit better. If you’ve found this blog on your own then well done – you’ve […]
Why Do The Tests Keep Coming Back Normal? I magine you’re feeling unwell. You’ve waited and waited, the tests finally come back in and the receptionist cheerfully announces ‘they’re all clear, no follow up needed’. There is nothing more devastating than feeling your body at war with itself only to be told there is nothing […]
Will I Ever Get Better? I f you (or someone you love) are new to chronic illness, or still fighting for a diagnosis, this question has probably crossed your mind more than once. Even if you are a seasoned pro, that little voice can pipe up at the most inconvenient of times. Sadly, there is […]
Why Do The Tablets Not Make Me Feel Better? A h, the medication conundrum. Before I became chronically ill I thought you went to the doctors, they diagnosed you, give you medication and then you get BETTER. In reality, there are a whole host of things that affect how well medication can help and […]
Getting Family and Friends to Understand You’re Disabled E very body is slightly different and will react to medications in different ways. What works for one person might be a horror show filled with unwanted side effects for someone else and there is no way of knowing until you try the medication The problem we […]
Feeling Confident as a Visabiliy Disabled Person T here is nothing quite like the first time you go out with a new mobility aid. It doesn’t matter if this is your first time using one or you’ve just upgraded from one type to another. The questions, stares and insecurities all come flooding in and leave […]