Community

Being chronically ill and disabled can be really lonely. Most non-disabled people just do not get the issues we face daily. It’s why the community is so vital to us. But how do you find one that lifts you up and makes you feel better (not worse)?

We’ve all seen the Facebook groups that tell you, your life is over, and now you want something different. Well, you’ve come to the right place!

  • The Handi Book of Love, Lust and Disability

    the handi book of love, lust and disability
    The Handi Book of love, lust and disability

     

    Ok so I have never really talked about sex on my page but it’s something I want to open up the discussion of

    I had the privilege for a long time of being able to pass as non disabled but once I started to use mobility aids it was then that I found that people stopped flirting. They stopped calling me gorgeous or sexy and instead I became inspiring and brave

    The thing is I was still me. I like to flirt, I like to dress up in a sexy outfit and take way too many selfies. ⁠

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  • Why Is Community So Important When You Are Chronically Ill?

    a little cartoon creature is sitting on a cloud singing 'don't wanna be all by myseeelf' The caption says, 'Why is community so important when you are chronically ill'.
    Why is community so important when you are chronically ill?

    When I was first diagnosed I only had one person in my life I could talk to about being chronically ill and at the time I avoided doing that because I felt I didn’t have the right to complain about my lot because they were so much worse. 

    It wasn’t till I became part of the Instagram community that I really saw the benefits of not going it alone. But how do we find where we fit and what makes a good community?

    It’s something that I have discussed with guests on the podcast more than once. When you first get sick it’s only natural to turn to the internet for answers, especially when doctors aren’t forthcoming with information about how to live with your new condition

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  • Inappropriate Questions

    there is a speech bubble saying 'what's wrong with asking?' a cartoon mouse is shrieking in despair 'where do I even start?' and the caption says 'inappropriate questions'
    Inappropriate Questions

    AAAAAARGH inappropriate questions! Where do I even start?

    We get them day in and day out and the worst part is always that the askee never understands why it isn’t ok. Sometimes we are too tired to educate people, others we just don’t have the time but how do we get this information across so we stop butting up against this? 

    It’s no secret that my personal opinion is representation. Books, TV and media are an excellent gateway for people to learn about experiences different from their own but having worked in the TV industry I also know the uphill battle that we still have to fight. 

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  • Episode 5 – Babe with a Mobility Aid

    Hannah is standing with her leopard print walker and a cape that says 'Am I Disabled Now?' The caption reads, 'Episode 5 - Babe with a mobility aid'

    How do you use mobility aids and still feel like you? Often the images we see of people using mobility aids are dreary and it looks like their life is over but that’s so far from reality. This week’s guest is Annika from @LittlePineNeedle who started the amazing #BabeWithAMobilityAid movement. We talk about coming to terms with loss of mobility, buying your first mobility aid and what it feels like to start claiming the word disabled.

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  • Episode 2 – Community

    Hannah is standing with her leopard print walker and a cape that says 'Am I Disabled Now?' The caption reads, 'Episode 2 - Community'

    At one point or another we’ve all taken to the internet to find out more about being disabled but how do you find the right community for you? Eva from the Instagram account @wheely_good_time talks with us about her experiences of becoming disabled and fall the things they forget to tell you, like how to actually use your wheelchair.

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