Being chronically ill and disabled can be really lonely. Most non-disabled people just do not get the issues we face daily. It’s why the community is so vital to us. But how do you find one that lifts you up and makes you feel better (not worse)?
We’ve all seen the Facebook groups that tell you, your life is over, and now you want something different. Well, you’ve come to the right place!
*Finally get diagnosis you’ve fought years for* My brain: are we sure that’s right? S oooo, it turns out being medically gaslit for years does have an impact. Who would have known? I found out that for years I have had an incorrect diagnosis and in fact I don’t have fibromyalgia but do have subclinical […]
How to do anything as a person with chronic fatigue L iving with chronic fatigue should be a sport it’s such a monumental challenge, except it can’t be a sport because every single competitor would be too tired to turn up for the qualifying rounds, never mind the main event.
Stop hiring one Paralympian and calling it a day on disability representation L ook, no shade to the Paralympians, you are all great. However, just like with non-disabled people not everyone who’s disabled is born to be an athlete and – frankly – it sucks this is often the only disability representation that we […]
What it means to have disabled pride A lot of people don’t get the importance of disabled pride. They often think we are glorifying something that shouldn’t talk about. Disability isn’t something to hide or feel embarrassed of and you aren’t alone.
How to Survive Christmas While Chronically Ill C hristmas is coming! I don’t know about you, but that suddenly makes me feel very, very tired. I mean, don’t get me wrong, in theory I love Christmas, you get to eat good food, spend time with family and friends, snow, presents… what’s not to love?
How to Support a Loved One Through Diagnosis I f you’ve been sent this blog by a loved one, the chances are you don’t really understand the diagnosis process and they want to help explain the complexities around diagnosis a bit better. If you’ve found this blog on your own then well done – you’ve […]
Why Do I Resent The Healthy People In My Life? T ruth time, my rage towards those I call ‘free range humans’ sometimes engulfs me in a ball of fury. The whining when they get a cold or have gone for a run and ‘ache’ after really gets to me and sometimes I have to […]
Why Do The Tests Keep Coming Back Normal? I magine you’re feeling unwell. You’ve waited and waited, the tests finally come back in and the receptionist cheerfully announces ‘they’re all clear, no follow up needed’. There is nothing more devastating than feeling your body at war with itself only to be told there is nothing […]
Will I Ever Get Better? I f you (or someone you love) are new to chronic illness, or still fighting for a diagnosis, this question has probably crossed your mind more than once. Even if you are a seasoned pro, that little voice can pipe up at the most inconvenient of times. Sadly, there is […]
Why Do The Tablets Not Make Me Feel Better? A h, the medication conundrum. Before I became chronically ill I thought you went to the doctors, they diagnosed you, give you medication and then you get BETTER. In reality, there are a whole host of things that affect how well medication can help and […]
