Community

Being chronically ill and disabled can be really lonely. Most non-disabled people just do not get the issues we face daily. It’s why the community is so vital to us. But how do you find one that lifts you up and makes you feel better (not worse)?

We’ve all seen the Facebook groups that tell you, your life is over, and now you want something different. Well, you’ve come to the right place!

  • My story has value

    My Story Has Value

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    his quote from Hannah Gadsby's Nanette has always resonated with me but now more than ever: my story has value. When I launched the NYG membership I once again had the privilege to learn and listen to people's stories of disability and chronic illness. Although our stories are similar, each is a unique and incredibly personal depiction of adversity, triumph and loss.

    The complex diagnoses that accompany chronic illnesses and disabilities can often result in stories filled with the heart-breaking recounting of losing every part of yourself only to find something that much more beautiful beneath all those layers. For many, uncovering the vulnerable inner you and having the courage to finally step out into the light as your true self, accepting and acknowledging both your strengths and limits, is freeing.

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  • What is radical acceptance?

    What is Radical Acceptance?

    What is radical acceptance
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    adical acceptance sounds like the kind of new-age bull you might want to steer clear of, along with juice cleanses and ‘think yourself better’, but it's not what you think. Before we talk about what radical acceptance really is, we need to highlight what it definitely isn't! Radical acceptance is not approval of a situation. Just because you are accepting a situation for what it is, it does not mean that you think it's good or right. It just means you are aware you can't change it.

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  • How to create a support system

    How to Create a Support System

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    aring for a chronically ill bod is tiring, not to mention expensive, but what if there was a better way? People living with chronic illnesses need access to so many things, in fact you need a team of therapists, physios, occupational therapists, nutritionists and so many more. However, it’s rare we get the chance to have all that and even if you do it’s unlikely everyone in the team really understands chronic illness and disability, which is the key to getting the best care. Finding a specialist who really ‘gets’ what an illness or condition means for everyday living can take months or even years of research, trial and error, and is often an unaffordable expense.

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  • How disability makes you a better employee

    How Disability Makes You A Better Employee

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    o really! If you remove the barriers to working, we actually make the best employees, here's why!

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  • Why traditional 9 to 5 doesn’t work when you’re disabled

    Why Traditional 9-5 Doesn't Work When You Are Disabled

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    ue to various barriers to entering the workforce, and staying there once you’re in, disabled people are more likely to be unemployed or self-employed. Difficulties in accessing education is a massive part of this, but there are various other barriers to work that disabled people face.

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  • Why disabled people have a rocky history with academia

    Why Disabled People Have A Rocky History With Academia

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    nfortunately, when it comes to education, academic institutions often fail even the most basic tests in accessibility. Learning how to make education accessible for students (and educators) with a whole range of disabilities should be an ongoing priority for schools, colleges and universities, but it seems many still have serious lessons to be learnt.

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  • When it comes to chronic illness why do some people not like the warrior narrative?

    When It Comes To Chronic Illness, Why Do Some People Not Like The Warrior Narrative?

    When it comes to chronic illness, why do some people not like the warrior narrative?
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    hen we find ourselves in conversations about minor illnesses, even a cold, there is a tendency for people to use the language of war, such as fighting or battling. People with medical conditions are often called “warriors” and under this description are encouraged to battle their illness and push themselves. Using the term warrior can be helpful for some people as a means of describing the challenges of being sick to others who are not living with an illness. But for others, the narrative can make them uncomfortable. This isn’t to say that it’s not a struggle for them, but people with chronic illness are who they are first and foremost, and not a warrior. Let’s look into why the warrior narrative doesn’t feel helpful and comfortable for some of the chronic illness community.

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  • The Handi Book of Love, Lust and Disability

    the handi book of love, lust and disability
    The Handi Book of love, lust and disability

     

    Ok so I have never really talked about sex on my page but it’s something I want to open up the discussion of

    I had the privilege for a long time of being able to pass as non disabled but once I started to use mobility aids it was then that I found that people stopped flirting. They stopped calling me gorgeous or sexy and instead I became inspiring and brave

    The thing is I was still me. I like to flirt, I like to dress up in a sexy outfit and take way too many selfies. ⁠

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  • Why Is Community So Important When You Are Chronically Ill?

    a little cartoon creature is sitting on a cloud singing 'don't wanna be all by myseeelf' The caption says, 'Why is community so important when you are chronically ill'.
    Why is community so important when you are chronically ill?

    When I was first diagnosed I only had one person in my life I could talk to about being chronically ill and at the time I avoided doing that because I felt I didn’t have the right to complain about my lot because they were so much worse. 

    It wasn’t till I became part of the Instagram community that I really saw the benefits of not going it alone. But how do we find where we fit and what makes a good community?

    It’s something that I have discussed with guests on the podcast more than once. When you first get sick it’s only natural to turn to the internet for answers, especially when doctors aren’t forthcoming with information about how to live with your new condition

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  • Inappropriate Questions

    there is a speech bubble saying 'what's wrong with asking?' a cartoon mouse is shrieking in despair 'where do I even start?' and the caption says 'inappropriate questions'
    Inappropriate Questions

    AAAAAARGH inappropriate questions! Where do I even start?

    We get them day in and day out and the worst part is always that the askee never understands why it isn’t ok. Sometimes we are too tired to educate people, others we just don’t have the time but how do we get this information across so we stop butting up against this? 

    It’s no secret that my personal opinion is representation. Books, TV and media are an excellent gateway for people to learn about experiences different from their own but having worked in the TV industry I also know the uphill battle that we still have to fight. 

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