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A cartoon reindeer is sat next to a present. The title says, 'How to surivive Christmas while chronically ill'

How to survive Christmas while being chronically ill

How to Survive Christmas While Chronically Ill C hristmas is coming! I don’t know about you, but that suddenly makes me feel very, very tired. I mean, don’t get me wrong, in theory I love Christmas, you get to eat good food, spend time with family and friends, snow, presents… what’s not to love?

How to support a loved one through diagnosis

How to support a loved one through diagnosis

How to Support a Loved One Through Diagnosis I f you’ve been sent this blog by a loved one, the chances are you don’t really understand the diagnosis process and they want to help explain the complexities around diagnosis a bit better. If you’ve found this blog on your own then well done – you’ve […]

Why do I resent the healthy people in my life?

Why do I resent the healthy people in my life?

Why Do I Resent The Healthy People In My Life? T ruth time, my rage towards those I call ‘free range humans’ sometimes engulfs me in a ball of fury. The whining when they get a cold or have gone for a run and ‘ache’ after really gets to me and sometimes I have to […]

Why do the tests keep coming back normal?

Why do the tests keep coming back normal?

Why Do The Tests Keep Coming Back Normal? I magine you’re feeling unwell. You’ve waited and waited, the tests finally come back in and the receptionist cheerfully announces ‘they’re all clear, no follow up needed’. There is nothing more devastating than feeling your body at war with itself only to be told there is nothing […]

Will I ever get better?

Will I ever get better?

Will I Ever Get Better? I f you (or someone you love) are new to chronic illness, or still fighting for a diagnosis, this question has probably crossed your mind more than once. ⁠Even if you are a seasoned pro, that little voice can pipe up at the most inconvenient of times. Sadly, there is […]

Getting friends and family to understand you're disabled

Getting family and friends to understand you’re disabled

Getting Family and Friends to Understand You’re Disabled E very body is slightly different and will react to medications in different ways. What works for one person might be a horror show filled with unwanted side effects for someone else and there is no way of knowing until you try the medication The problem we […]

Feeling confident as a visibly disabled person

Feeling confident as a visibly disabled person

Feeling Confident as a Visabiliy Disabled Person T here is nothing quite like the first time you go out with a new mobility aid. ⁠It doesn’t matter if this is your first time using one or you’ve just upgraded from one type to another. The questions, stares and insecurities all come flooding in and leave […]

my story has value

My story has value

My Story Has Value T his quote from Hannah Gadsby’s Nanette has always resonated with me but now more than ever: my story has value. When I launched the NYG membership I once again had the privilege to learn and listen to people’s stories of disability and chronic illness. Although our stories are similar, each […]

Finding quality of life in chronic illness

Finding quality of life in chronic illness

Finding Quality of Life in Chronic Illness L ife with a chronic illness can sometimes feel like work/sleep/clean – repeat indefinitely. It’s sometimes as if all the fun is sucked out of life because of fatigue and limited energy, but what if I told you doing things just because they make you happy is allowed […]