• Not your inspiration!

    Inspiration p⭐rn is a term that was coined in 2012 by disability rights activist Stella Young.

    This term portrays people with disabilities as inspirational, solely or in part because of their disability and describes how disabled people are often used as motivation for non-disabled people.

    Stella’s reason for using the term p⭐rn was to highlight the objectification of one group of people for the benefit of another group of people.

    So what exactly is inspiration p⭐rn and why can this term be a bad thing? Let’s take a further look!

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  • When it comes to chronic illness why do some people not like the warrior narrative?


    When we find ourselves in conversations about minor illnesses, even a cold, there is a tendency for people to use the language of war, such as fighting or battling.

    People with medical conditions are often called “warriors” and under this description are encouraged to battle their illness and push themselves.

    Using the term warrior can be helpful for some people as a means of describing the challenges of being sick to others who are not living with an illness. But for others, the narrative can make them uncomfortable.

    This isn’t to say that it’s not a struggle for them, but people with chronic illness are who they are first and foremost, and not a warrior.

    Let’s look into why the warrior narrative doesn’t feel helpful and comfortable for some of the chronic illness community.

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  • Why wellness culture is toxic for chronic illness

    With the wellness industry valued at $3.7 trillion in 2015 and continuing to be on the rise, it can be easy to get sucked into the latest wellness trends and crazes.

    Many are jumping on the wellness bandwagon and while this may seem like a positive thing, it is not so positive when it comes to chronic illness.

    There are juice bars on every corner, mindfulness apps advertised relentlessly on social media, and wellness influencers praising celery juice or the latest cleanse as a miracle cure. These serve as constant reminders of the unrealistic promise that you can recover from any illness with enough work.

    But this is not the only reason why wellness culture is so bad for the chronic illness community.

    Wellness culture has been influencing the beliefs of doctors more and more, to the extent that they believe it’s a one size fits all cure for everything, even if it ends up harming you in the long run.

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  • What’s the difference between person first and identity first language?

    Who knew that as an individual with a disability, it’s our responsibility, to guide non-disabled people as to our choice of language to use about ourselves? 

    I knew there were going to be a lot of adjustments when I became chronically ill but I really didn’t anticipate this one! 

    The dehumanisation of the disabled has been, and continues to be, a huge issue and so choosing the type of language we want to be referred to by is a reminder to the outside world that we are still real people. 

    As shocking as it is, it’s still all too common to hear people saying things like “the disabled”, or referring to someone as “a wheelchair”. This is an attempt to separate us  in society so non-disabled people don’t have to think about our wants, needs, rights or feelings. 

    So it’s time to take control of the narrative and dictate whether you want to be spoken of in person first or identity first language. 

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  • Walker Makeover

    walker makeover
    Boring mobility aids should be a thing of the past! One of the first things I did when I got my walker was to pimp it but what I didn’t realise was what a difference it would make in the way people treated me. Instead of the awkward ‘what happened?’ they instead just complimented me on my style and then talked to me like any other person which honestly was amazing.
     
    So here’s how to pimp your own ride!
    A black ugly looking walker (before hannah painted it)
    Hannah's leopard print and bubble gum pink walker

    Before

    After

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  • The Handi Book of Love, Lust and Disability

    the handi book of love, lust and disability
    The Handi Book of love, lust and disability

     

    Ok so I have never really talked about sex on my page but it’s something I want to open up the discussion of

    I had the privilege for a long time of being able to pass as non disabled but once I started to use mobility aids it was then that I found that people stopped flirting. They stopped calling me gorgeous or sexy and instead I became inspiring and brave

    The thing is I was still me. I like to flirt, I like to dress up in a sexy outfit and take way too many selfies. ⁠

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  • Why Is Community So Important When You Are Chronically Ill?

    a little cartoon creature is sitting on a cloud singing 'don't wanna be all by myseeelf' The caption says, 'Why is community so important when you are chronically ill'.
    Why is community so important when you are chronically ill?

    When I was first diagnosed I only had one person in my life I could talk to about being chronically ill and at the time I avoided doing that because I felt I didn’t have the right to complain about my lot because they were so much worse. 

    It wasn’t till I became part of the Instagram community that I really saw the benefits of not going it alone. But how do we find where we fit and what makes a good community?

    It’s something that I have discussed with guests on the podcast more than once. When you first get sick it’s only natural to turn to the internet for answers, especially when doctors aren’t forthcoming with information about how to live with your new condition

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  • I’m Not A Drug Seeker, I Am A Person In Pain

    text reads 'I am not a drug seeker I am a person in pain'

    Above I mentioned how the change in narrative around pain medications is affecting our treatment and part of what has caused this change is the drug seeker narrative. 

    Unfortunately, it’s true that opiods at one point were over prescribed but this was to people who had no long term need for them. They are after all addictive but what happens when you are someone who has chronic pain that is never going away? 

    We’ve become obsessed with weeding out the fakers, so much so that we are actually harming those who genuinely need help.

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  • What Is Self Diagnosis And Why Is It Important?

    a ghost is dripping green sludge and saying 'I think something is wrong' next to them the text says, 'What is self diagnosis and why is it important?'
    what is self diagnosis and why is it important?

    With the rise of the internet and the ability to google your symptoms many have been turning to self diagnosis but what really is it and why is important? 

    We’ve all heard about doctor google and how you probably shouldn’t just google symptoms as more often than not the internet will tell you that you are clearly dying of the plague, but why is it such a hot topic in the chronic illness community? 

    Self diagnosis is when a patient uses research to find information on a condition that best fits the symptoms they are experiencing. Often this happens because the patient either doesn’t have access to healthcare or they do but either due to discrimination or fear they are unable to seek professional care. 

     

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  • What’s It Like To Become Sick And Never Get Better

    Title says 'what's it like to get sick and never get better' there is an angry bear with a thermometer stuck out it's mouth saying, 'well this sucks'
    What is it like to get sick and never get better

    COVID-19 has ripped through our lives and turned everything upside down but there’s something else going on that until now hadn’t been brought to the public’s attention, and that’s the idea that you can get sick and never get better. 

    You might have started to see it in the news or online, ‘post viral fatigue’ seems to be cropping up everywhere but what does it really mean and why is it linked to chronic illness? 

    Post viral fatigue is more commonly linked to M.E. / CFS. Although we aren’t 100% sure why it happens, in a lot of M.E. / CFS cases the patient will become sick with a virus, mostly Epstein Barr (more commonly known as mumps, mono or glandular fever) and after the infection has gone away they are left with the debilitating fatigue and other symptoms. 

    Why we are now seeing this mentioned in conjunction with COVID-19 is that there are a number of patients, dubbed long haulers, that seem to be having the same issues as M.E. / CFS patients.

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