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The Handbook

What is the difference between identity first and person first language

What’s the difference between person first and identity first language?

Who knew that as an individual with a disability, it’s our responsibility, to guide non-disabled people as to our choice of language to use about ourselves?  I knew there were going to be a lot of adjustments when I became chronically ill but I really didn’t anticipate this one!  The dehumanisation of the disabled has […]

walker makeover

Walker Makeover

Boring mobility aids should be a thing of the past! One of the first things I did when I got my walker was to pimp it but what I didn’t realise was what a difference it would make in the way people treated me. Instead of the awkward ‘what happened?’ they instead just complimented me […]

the handi book of love, lust and disability

The Handi Book of Love, Lust and Disability

Disclosure: I only recommend products I would use myself and all opinions expressed here are our own. This post may contain affiliate links that at no additional cost to you, I may earn a small commission. Ok so I have never really talked about sex on my page but it’s something I want to open up […]

Why is community so important when you are chronically ill?

Why Is Community So Important When You Are Chronically Ill?

When I was first diagnosed I only had one person in my life I could talk to about being chronically ill and at the time I avoided doing that because I felt I didn’t have the right to complain about my lot because they were so much worse.  It wasn’t till I became part of the […]

text reads 'I am not a drug seeker I am a person in pain'

I’m Not A Drug Seeker, I Am A Person In Pain

Above I mentioned how the change in narrative around pain medications is affecting our treatment and part of what has caused this change is the drug seeker narrative.  Unfortunately, it’s true that opiods at one point were over prescribed but this was to people who had no long term need for them. They are after […]

what is self diagnosis and why is it important?

What Is Self Diagnosis And Why Is It Important?

With the rise of the internet and the ability to google your symptoms many have been turning to self diagnosis but what really is it and why is important?  We’ve all heard about doctor google and how you probably shouldn’t just google symptoms as more often than not the internet will tell you that you […]

What is it like to get sick and never get better

What’s It Like To Become Sick And Never Get Better

COVID-19 has ripped through our lives and turned everything upside down but there’s something else going on that until now hadn’t been brought to the public’s attention, and that’s the idea that you can get sick and never get better.  You might have started to see it in the news or online, ‘post viral fatigue’ […]

we know it takes between 5-10 years to be diagnosed with a chronic illness but why does it take so long?

Why Does It Take So Long To Get Diagnosed With A Chronic Illness?

Research shows us that it takes between 5-10 years to get diagnosed with a chronic illness. Some stats for specific conditions are:  Ankylosing Spondylitis – Research shows that it takes 1/3 of patients up to 10 years to get a diagnosis.  Psoriatic Arthritis – For 30 percent of PsA patients, it took more than five […]

The Data Gap That’s Killing Us

We all know about the gender pay gap but how much do you know about the data gap?  In science the white straight male is used as the ‘average’ human. He’s the reason why supermarket shelves are built too tall for most people or why in a car accident you are 47% more likely to […]

How To Make A Complaint About Your Medical Provider

This week I’ve been looking at how you make a complaint to your health care provider.  Surprisingly many people don’t know they can actually make a complaint about the treatment they receive. Like many things with chronic illness this is yet another thing you don’t get told about. So let’s break it down! There is […]