• Caption This

    Two angry red cartoon devil's with wings are pointing at a caption that says, 'caption this'
    Caption this


    If you haven’t been watching my stories you won’t yet of seen caption gate. While making my first IGTV video I came up against issues that those from the disabled community always face. Access it seems is something only we care about and massive companies couldn’t give a flying fuck which means that all the labor falls on people who really don’t have the energy for it. 


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  • The First Rule of Pain Club is We Don’t Talk About Pain

    A cartoon zombie with it's arm falling off and green gas coming from it's mouth is standing next to a caption that reads, 'the first rule of pain club is we don't talk about pain'
    The first rule of pain club is we don't talk about pain

    I am breaking the cardinal rule of pain club and I am actually going to talk about pain.

    It was only the other day, when I was talking with a fellow spoonie friend that I realised to some extent we all actively avoid talking about our pain.

    I think in the beginning it’s about not creating too much fuss or even just not really knowing how to handle the amount of pain you are in. But as time goes on I find myself talking about it less and less. It’s not for fear of my network, I have some incredible support both online and offline. It’s more a fear of admitting how bad it really is.


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  • You Can’t Pour From An Empty Cup

    there is a cartoon heart bleeding out and the caption says 'you can't pour from an empty cup'
    You can't pour from an empty cup

    Isn’t that heart just the best image for when you keep putting others needs above your own? You just end up bleeding out. 

    Now don’t get me wrong, I am so guilty of this too. I think as people who suffer from chronic illness we have this awful tendency to try and put others needs first out of guilt that so often we let them down or can’t be there for them in the way that we would if we weren’t sick. It’s like we bargain with ourselves that if we push and go to that  party or help that friend out, it will make up for all those times we couldn’t. The thing is it normally just lands us in a flare and has us cancelling other plans that we will feel guilty about. 


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  • My Pain Isn’t Magically Gone Just Because I Take Pills

    A cartoon unicorn with stars shooting from it's horn is next to a caption that reads, 'my pain isn't magically gone just because I take pills'
    My pain isn't magically gone because I take pills

    Chronic pain (that is pain that last for six months or more) is largely misunderstood and worse still when it comes to women and pain. Which is astounding considering that 70% of chronic pain patients are women but 80% of pain studies are carried out on men or male mice. That’s just not ok! We are given drugs that once finally tested on women tend to just be a load of side effects and little to no benefit which is not surprising when you consider that our immune systems are actually quite different to mens. It’s one of the reasons why scientists think we live longer but it could also be a massive factor in why we are more prone to issues that stem from the immune system. 


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  • All Things Access

    Two cartoon mice in crowns have a caption between them that reads, 'Everything you didn't know about access'
    Everything you didn't know about access

    I have a confession to make, I still worry about getting access needs wrong, so it’s no wonder non disabled people can often feel completely out of their depth with this too. 

    Access is an incredibly personal thing and I am a true believer of the idea that you will never truly understand access issues until you face them. I never really understood how important drop curbs were until I bought my mobility scooter and had to launch myself off pavements without them (it’s not as fun as it sounds and breaks your back!) but what I found is there is a wealth of information out there and some amazing people who are really breaking it down and making it, well, accessible!


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  • Episode 5 – Babe with a Mobility Aid

    Hannah is standing with her leopard print walker and a cape that says 'Am I Disabled Now?' The caption reads, 'Episode 5 - Babe with a mobility aid'

    How do you use mobility aids and still feel like you? Often the images we see of people using mobility aids are dreary and it looks like their life is over but that’s so far from reality. This week’s guest is Annika from @LittlePineNeedle who started the amazing #BabeWithAMobilityAid movement. We talk about coming to terms with loss of mobility, buying your first mobility aid and what it feels like to start claiming the word disabled.

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  • Episode 4 – Ableism

    Hannah is standing with her leopard print walker and a cape that says 'Am I Disabled Now?' The caption reads, 'Episode 4 - Ableism'

    What is ableism and how does it apply to me? This weeks guest, Nina from @Nina_Tame talks all things ableism. From how we deal with it while out and about to unpacking internalised ableism and the work we have to do when we first become disabled.

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  • Episode 3 – Working

    Hannah is standing with her leopard print walker and a cape that says 'Am I Disabled Now?' The caption reads, 'Episode 3 - Working'

    When do you tell your boss your sick? How do you even fit in working with a chronic illness? This weeks guest Jameisha from @youlookoktome talks all things working and disability. From asking for accommodations and the guilt that can come from that, we cover it all.

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  • Episode 2 – Community

    Hannah is standing with her leopard print walker and a cape that says 'Am I Disabled Now?' The caption reads, 'Episode 2 - Community'

    At one point or another we’ve all taken to the internet to find out more about being disabled but how do you find the right community for you? Eva from the Instagram account @wheely_good_time talks with us about her experiences of becoming disabled and fall the things they forget to tell you, like how to actually use your wheelchair.

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  • Episode 1 – Fitness

    Hannah is standing with her leopard print walker and a cape that says 'Am I Disabled Now?' The caption reads, 'Episode 1 - Fitness'

    Ever wondered how you really fit exercise into chronic illness? Spoiler alert it’s not as easy as doctor’s make it out to be. This week’s guest Ali Hemsley gives us the low down on what it’s really like going from bed bound to gym bound. We also delve deep into what it’s like loosing your mobility and that first time you step out the door with your mobility aid.

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